1. The illness I live with is: Type I diabetes
2. I was diagnosed with it in the year: 2007
3. But I had symptoms since: past six months, maybe more :o
4. The biggest adjustment I've had to make is: watching and figuring out what to eat, and making myself check my sugar and eat on time
5. Most people assume: i can't eat sugar
6. The hardest part about mornings are: figuring out what to eat and figuring out how much energy i have to make a meal
7. My favorite medical TV show is: scrubs and House (sometimes)
8. A gadget I couldn't live without is: my cell phone or laptop
9. The hardest part about nights are: is turning off the tv to go to bed
10. Each day I take: insulin and some other stuff
11. Regarding alternative treatments: find it interesting....
12. If I had to choose between an invisible illness or visible I would choose: none of thee above
13. Regarding working and career: want to have a job that allows me to check my sugar and treat a low
14. People would be surprised to know: i reuse needles HA and i love diabetic humor jokes, especially chuck norris
15. The hardest thing to accept about my new reality has been: the balance of living a life with no regrets, but the kind that doesn't hurt my freedom to be me and hurt my over all health to be free
16. Something I never thought I could do with my illness that I did was: eat candy and junk food
17. The commercials about my illness: soooo cheesy, but fun to life at
18. Something I really miss doing since I was diagnosed is: overindulging in chips and salsa or my fave candy, and not worrying about not feeling good as i go about my day (i go back and forth sometime)
19. It was really hard to have to give up: mountain dew and double choco cookies and blizzards
20. A new hobby I have taken up since my diagnosis is: very knowledgeable about diabetes
21. If I could have one day of feeling normal again I would: eat what i want, exerise hard, and sleep in
22. My illness has taught me: life sucks and that sometimes you can't be "the perfect" diabetic
23. One thing people say that gets under my skin is:telling me what i should and shouldn't do, i'll do what i damn well please be it good or bad.
24. But I love it when people: offer me sugary food even though they know i'm diabetic, or when they insist that there food is diabetic friendly and it really a) taste bad b) isn't really friendly c) is very very bad (aka goood)
25. My favorite motto, scripture, quote that gets me through tough times is: God will not allow anything to come into your life that you cannot handle.
26. When someone is diagnosed I'd like to tell them: read everything in site, question everything, and figure out what works for you and only you
27. Something that has surprised me about living with an illness is: how expensive the disease really is
28. The nicest thing someone did for me when I wasn't feeling well was: my friend took his mothers bday present of a bear holding a gift and he wrote insulin on the gift, and then gave it to me.
29. I'm involved with Invisible Illness Week because: i didn't know i was involved... i guess i am without knowing it, it's like i'm invisible to the fact that i'm invisible to it. hahahaa
of sorts
Thursday, September 17, 2009
Sunday, August 23, 2009
hey!
will somebody come to my house check my sugar, make me some food, and make me take some medicine. I haven't been acting diabetic for the last couple months... i think i forgot how to!
In other words i'm NOT looking forward to "making" myself start a routine/schedule or picking out food to eat
In other words i'm NOT looking forward to "making" myself start a routine/schedule or picking out food to eat
Saturday, April 25, 2009
Why
Why do you think diabetics decide to not take care of themselves or why do you think diabetics decide not to handle their blood sugar?
Being a diabetic is very hard, not acting like a diabetic is hard to, especially on your body
though a persons goal is to keep good control, a person also doesn't want to be tied down
It's really hard to be spontaneous when following a mundane schedule
When we have control of our blood sugar we have control of our diabetes, but we also have to deal with the confusing upkeep
when we choose not to take our medicine, count or carbs, or check our sugar we are trying to regain control of our life
(a life outside of the disease)
I find myself going back and forth from good control to bad control, because i want to have it all.
I want to be able to do whatever i want, and i don't want my sugar keeping me back
but if i don't do what i'm suppose to then i won't have the energy to accomplish what i need and dream to do
I want the great control, but i want the freedom to
by ignoring it, it doesn't exist
by acknowledging it we place boundaries and restrictions
but what about all the potential complications??
I believe diabetics yo yo so much because emotionally it's the only way we know to handle the disease, despite the end result
we know we're hurting ourselves, but if we can't handle it emotionally then we will never be able to handle the physical reality of it
it's the only way we don't go crazy
denail, anger, guilt, ashamed balanced with freedom, control, health, happiness
I think the answer to stop the yo yo effect is to find a balance between living your life and controlling your diabetes
Now that's the real challenge
keeping things fresh and living your life without limitations while not letting the diabetes get you down or control your life
but the enigma is
you have to remember that if you don't control you diabetes it will be hard to live that life without complications to your freedom
Being a diabetic is very hard, not acting like a diabetic is hard to, especially on your body
though a persons goal is to keep good control, a person also doesn't want to be tied down
It's really hard to be spontaneous when following a mundane schedule
When we have control of our blood sugar we have control of our diabetes, but we also have to deal with the confusing upkeep
when we choose not to take our medicine, count or carbs, or check our sugar we are trying to regain control of our life
(a life outside of the disease)
I find myself going back and forth from good control to bad control, because i want to have it all.
I want to be able to do whatever i want, and i don't want my sugar keeping me back
but if i don't do what i'm suppose to then i won't have the energy to accomplish what i need and dream to do
I want the great control, but i want the freedom to
by ignoring it, it doesn't exist
by acknowledging it we place boundaries and restrictions
but what about all the potential complications??
I believe diabetics yo yo so much because emotionally it's the only way we know to handle the disease, despite the end result
we know we're hurting ourselves, but if we can't handle it emotionally then we will never be able to handle the physical reality of it
it's the only way we don't go crazy
denail, anger, guilt, ashamed balanced with freedom, control, health, happiness
I think the answer to stop the yo yo effect is to find a balance between living your life and controlling your diabetes
Now that's the real challenge
keeping things fresh and living your life without limitations while not letting the diabetes get you down or control your life
but the enigma is
you have to remember that if you don't control you diabetes it will be hard to live that life without complications to your freedom
Friday, April 24, 2009
(Dia-game) Pack and Marlon
Released in 1995 on SNES, game cost 69.95
geared towards children with type 1, produced by the same people who did Cap. Novolin
Packy & Marlon is supported by Roche Diagnostics, makers of Accu-Chek(tm) products.
RODENTS have raided camp Camp Wakee, and these two cute elephants must gather all there scattered supplies and fend off the rats
fight gorillas, punching kangaroos, octopus, blowfish, a ghost and his little ghosts, and then beat the king rat (no idea how it ends, couldn't find much info)
logbooks,carb exchanges, multiple shots, and bgs carrying over each level! oh my
smash the rats, spit peanuts and water at them, collect food to keep sugar good, stay away from bad food, and for gods sake don't eat bad food because you'll pass out and die like cap novolin. {{game over}}
similar to Cap Novolin, you have to check your sugar, draw up your insulin, answer questions about diabetes from the owl and read facts
What I like.. This game saves lives because there was a 77 percent reduction in unscheduled urgent care visits for kids in a six month placebo controlled clinical trial AND 31 children played the game for 34 hours in the six month trial which was the same as the 28 patients who played the placebo video game. I didn't know placebos saved so many...question is which game was more fun the placebo or the real game.
Honestly the elephants are cute, they flap their ears like dumbo to fly, the controls are easier, the graphics are better
What i don't like the usual unfun educational gameplay. But this game was kinda cute, i dare say. Way better then Cap Novolin
articles and such:
alot of bad reviews on the game http://www.youtube.com/results?search_type=&search_query=Packy+and+Marlon&aq=f
http://en.wikipedia.org/wiki/Packy_and_Marlon\
18 grueling levels ugh http://www.somethingawful.com/d/rom-pit/packy-marlon.php
Clickhealth site doesn't work http://findarticles.com/p/articles/mi_m0EIN/is_1998_Oct_12/ai_53074401/
dying of lung cancer ? play SNES Rex Ronan http://en.wikipedia.org/wiki/Rex_Ronan
have asthma? play Bronkie the Bronchiasaurus only avaliable by prescription http://en.wikipedia.org/wiki/Bronkie_the_Bronchiasaurus
geared towards children with type 1, produced by the same people who did Cap. Novolin
Packy & Marlon is supported by Roche Diagnostics, makers of Accu-Chek(tm) products.
RODENTS have raided camp Camp Wakee, and these two cute elephants must gather all there scattered supplies and fend off the rats
fight gorillas, punching kangaroos, octopus, blowfish, a ghost and his little ghosts, and then beat the king rat (no idea how it ends, couldn't find much info)
logbooks,carb exchanges, multiple shots, and bgs carrying over each level! oh my
smash the rats, spit peanuts and water at them, collect food to keep sugar good, stay away from bad food, and for gods sake don't eat bad food because you'll pass out and die like cap novolin. {{game over}}
similar to Cap Novolin, you have to check your sugar, draw up your insulin, answer questions about diabetes from the owl and read facts
What I like.. This game saves lives because there was a 77 percent reduction in unscheduled urgent care visits for kids in a six month placebo controlled clinical trial AND 31 children played the game for 34 hours in the six month trial which was the same as the 28 patients who played the placebo video game. I didn't know placebos saved so many...question is which game was more fun the placebo or the real game.
Honestly the elephants are cute, they flap their ears like dumbo to fly, the controls are easier, the graphics are better
What i don't like the usual unfun educational gameplay. But this game was kinda cute, i dare say. Way better then Cap Novolin
articles and such:
alot of bad reviews on the game http://www.youtube.com/results?search_type=&search_query=Packy+and+Marlon&aq=f
http://en.wikipedia.org/wiki/Packy_and_Marlon\
18 grueling levels ugh http://www.somethingawful.com/d/rom-pit/packy-marlon.php
Clickhealth site doesn't work http://findarticles.com/p/articles/mi_m0EIN/is_1998_Oct_12/ai_53074401/
dying of lung cancer ? play SNES Rex Ronan http://en.wikipedia.org/wiki/Rex_Ronan
have asthma? play Bronkie the Bronchiasaurus only avaliable by prescription http://en.wikipedia.org/wiki/Bronkie_the_Bronchiasaurus
Thursday, April 23, 2009
(Dia-game) Capitan Novolin
This game is so weird i almost don't want to get in to it... This is what Magi and the sleeping star SHOULDN'T be.
This game was released in 1992 on SNES, retail 60 bucks
This game was sponsored by Novo Nordisk, makers of Novolin brand insulin.
Captain Novolin has to save the mayor who has been abducted by aliens. The mayor is slowing running out of supplies!
The aliens have turned into sugary foods like cookies and doughnuts, with predictable jumping patters.
Pregame you must listen to a "doctors" advice, match your sugar level to the colors, and use a very large needle to get your right dose. (holding down and pressing A fast will get to the game faster)
Captain Novolin must stomp, jump backwards, or duck his enemies, collect diabetic tips, answer some questions, and pick the right food that your doc recommended before the level.
The Mayor sugar is 30, do you give him cheese and crackers or a glucagon shot!! LOL
you have to input a 3 digit code in the beginning, i hope this doesn't mean the game will try to dosage your insulin
What I like... seriously i can't pick one, but i heard he makes some horrible noises when he falls and when he eats to much he falls down and dies or passes out. Also it was endorsed by Mary Taylor Moore, poor kids.
articles:
Will smith and Joan Rivers and I got killed by a cookie! http://www.youtube.com/watch?v=igAb2BXVIAw I
7 people made this game... watch this video for the rest of this sentence http://www.youtube.com/watch?v=flQu-MrcSE0
60 bucks!! http://www.diabeteshealth.com/read/1992/12/01/42/captain-novolin/
http://en.wikipedia.org/wiki/Captain_Novolin
that means that for every diabetic life it saved, it killed that many epileptics http://www.seanbaby.com/nes/egm04.htm
http://www.youtube.com/results?search_type=&search_query=speed+run+Captain+Novolin&aq=f
http://www.youtube.com/watch?v=H580n3fbk60
This game was released in 1992 on SNES, retail 60 bucks
This game was sponsored by Novo Nordisk, makers of Novolin brand insulin.
Captain Novolin has to save the mayor who has been abducted by aliens. The mayor is slowing running out of supplies!
The aliens have turned into sugary foods like cookies and doughnuts, with predictable jumping patters.
Pregame you must listen to a "doctors" advice, match your sugar level to the colors, and use a very large needle to get your right dose. (holding down and pressing A fast will get to the game faster)
Captain Novolin must stomp, jump backwards, or duck his enemies, collect diabetic tips, answer some questions, and pick the right food that your doc recommended before the level.
The Mayor sugar is 30, do you give him cheese and crackers or a glucagon shot!! LOL
you have to input a 3 digit code in the beginning, i hope this doesn't mean the game will try to dosage your insulin
What I like... seriously i can't pick one, but i heard he makes some horrible noises when he falls and when he eats to much he falls down and dies or passes out. Also it was endorsed by Mary Taylor Moore, poor kids.
articles:
Will smith and Joan Rivers and I got killed by a cookie! http://www.youtube.com/watch?v=igAb2BXVIAw I
7 people made this game... watch this video for the rest of this sentence http://www.youtube.com/watch?v=flQu-MrcSE0
60 bucks!! http://www.diabeteshealth.com/read/1992/12/01/42/captain-novolin/
http://en.wikipedia.org/wiki/Captain_Novolin
that means that for every diabetic life it saved, it killed that many epileptics http://www.seanbaby.com/nes/egm04.htm
http://www.youtube.com/results?search_type=&search_query=speed+run+Captain+Novolin&aq=f
http://www.youtube.com/watch?v=H580n3fbk60
(Dia-game) Magi and the Sleeping Star
Here's a new game from Gamequalslife called The Magi and the Sleeping Star, it's about an 3rd person action adventure where a boy with magical ablities has to go save his family and beat the bad guys. BUT he has type 1 diabetes and his skills will be effected by his blood sugar, hey just like real life when i try to beat bad guys. In the game you must make sure your character eats the right amount of food, takes his medicine, and keeps his sugar in right place.
What i like about the game is that the hero has diabetes, which goes to show that having diabetes isn't everything and it cannot define you when evil is afoot! It will be nice to have a fantasy role model, but will it work? The music and game play look like it could be fun, just like a regular game.
What i don't like is that the game will try and give us advice about diabetes and will make you figure out all the annoying diabetes stuff just so you can go to the next step. How is a kid suppose to sit through figuring out somebody elses carbs, insulin intake, and then to top it off game producers medical mumbo jumbo; when all he wants to do is play the damn game. Also i have a problem basing one's life solely on blood sugar levels, yes there important but you don't want to teach kids to agonize over them to the point of hyperventilation. It's hard enough being diabetic, why do we have to make a fantasy game even harder? It's called a fantasy for a reason, because nobody would want to be a superhero with diabetes.
Despite my negativty i do welcome the challenge of a company to make a succesful game about diabetes or a diabetic hero. All superheros have some flaw, why not the hardship of rollar coaster bloodsugars, picking carbs, injecting insulin, and checking ones bloodsugar. He'll go ahead and start the merchandise, i'm sure a i wouldn't mind a Magi meter or bandaids.
(hopefully it's more successful then when they made a magic game based on the bible)
articles:
http://www.gamecareerguide.com/industry_news/23309/game_equals_life_announces_.php
http://www.developmag.com/press-releases/46573/Game-Equals-Life-Announces-The-Magi-and-the-Sleeping-Starndash-A-Breakthrough-Health-Game-for-Type-1-Diabetes
http://www.escapistmagazine.com/news/view/91142-Save-The-World-While-Saving-Your-Insulin
http://www.youtube.com/watch?v=SQOfo_RwHCc
What i like about the game is that the hero has diabetes, which goes to show that having diabetes isn't everything and it cannot define you when evil is afoot! It will be nice to have a fantasy role model, but will it work? The music and game play look like it could be fun, just like a regular game.
What i don't like is that the game will try and give us advice about diabetes and will make you figure out all the annoying diabetes stuff just so you can go to the next step. How is a kid suppose to sit through figuring out somebody elses carbs, insulin intake, and then to top it off game producers medical mumbo jumbo; when all he wants to do is play the damn game. Also i have a problem basing one's life solely on blood sugar levels, yes there important but you don't want to teach kids to agonize over them to the point of hyperventilation. It's hard enough being diabetic, why do we have to make a fantasy game even harder? It's called a fantasy for a reason, because nobody would want to be a superhero with diabetes.
Despite my negativty i do welcome the challenge of a company to make a succesful game about diabetes or a diabetic hero. All superheros have some flaw, why not the hardship of rollar coaster bloodsugars, picking carbs, injecting insulin, and checking ones bloodsugar. He'll go ahead and start the merchandise, i'm sure a i wouldn't mind a Magi meter or bandaids.
(hopefully it's more successful then when they made a magic game based on the bible)
articles:
http://www.gamecareerguide.com/industry_news/23309/game_equals_life_announces_.php
http://www.developmag.com/press-releases/46573/Game-Equals-Life-Announces-The-Magi-and-the-Sleeping-Starndash-A-Breakthrough-Health-Game-for-Type-1-Diabetes
http://www.escapistmagazine.com/news/view/91142-Save-The-World-While-Saving-Your-Insulin
http://www.youtube.com/watch?v=SQOfo_RwHCc
Tuesday, April 14, 2009
i hate doctors
I hate doctors. Maybe i haven't found the right one but i think it's pretty expensive to go through doctors to just find the right one.
My medicine is free through LILLY CARES and SANOFI AVENTIS, (It's based on my income)
Insulin, you know the stuff that keeps me alive to begin with, kinda important
I went to the doctor to get her to help me enroll in the program and fax my prescription to them
I CALLED to remind them to do this, plus i had a A1C done and nobody called me on the results of that
I CALLED and left a message at the nurses station almost EVERYDAY, finally had to leave a message on whoever is in charge of their office
I was told to MAKE an appointment, and i did it because i was running low on medicine and wanted to do everything in my power to get them to FAX that prescription
I went to the appointment, was FINALLY told my a1c, and was told they were going to fax my stuff to L.C. and S.A t for me
THEY FINALLY DID IT, i even got some samples, because i told them once i run out of insulin i'm not taking anymore (just a threat, but seriously would have took me a while to afford it)
(special note: i have this weird phobia of not wanting to use or take medicine/diabetic supplies if i don't have money to get more, call me crazy, but i feel like i have some control of my supplies by not buying any)
MARCH 18 everything is sent to the said companies above, i get letter stating i was enrolled for Lantus, gotta re-enroll for Humalog in june.(my note)
TODAY IS APRIL 16, both LILLY CARES AND SAN.AVEN. told me the medicine arrived on MARCH 30th and March 20th
WHERE THE LKLQ@)#$RU$O$U$ IS MY MEDICINE THEN
OKay..... take break... breath... i just got a call back... from the "insert whatever horrible name." docs office
They said my name wasn't on the package... i can't believe that... and that they thought it was for them....................................................................................................................
They offered to give me some solar pens for the lantus, becasuse they gave most of the vials out 0.0! They have the humalog. They said i could use the pens with a syringe, just draw it up the same way (TRUE???)
reasons i hate doctors: billing offices, front desk offices, nurses, and yes i don't even like my doctor. She's to flighty or in a hurry with me. And i know i'm not helping by NOT having my sugars written down, but who's supposed to help me while i figure that out? These docs don't take house calls. I don't even like my doctor but i can't even get the simplest help, i mean i'm grateful for all the assistance i get, but for once i'd like them to respect the person who has the disease, especially when it comes to really important medicine.
I just love being diabetic, every day makes me want to be one even more *not sarcasm*
My medicine is free through LILLY CARES and SANOFI AVENTIS, (It's based on my income)
Insulin, you know the stuff that keeps me alive to begin with, kinda important
I went to the doctor to get her to help me enroll in the program and fax my prescription to them
I CALLED to remind them to do this, plus i had a A1C done and nobody called me on the results of that
I CALLED and left a message at the nurses station almost EVERYDAY, finally had to leave a message on whoever is in charge of their office
I was told to MAKE an appointment, and i did it because i was running low on medicine and wanted to do everything in my power to get them to FAX that prescription
I went to the appointment, was FINALLY told my a1c, and was told they were going to fax my stuff to L.C. and S.A t for me
THEY FINALLY DID IT, i even got some samples, because i told them once i run out of insulin i'm not taking anymore (just a threat, but seriously would have took me a while to afford it)
(special note: i have this weird phobia of not wanting to use or take medicine/diabetic supplies if i don't have money to get more, call me crazy, but i feel like i have some control of my supplies by not buying any)
MARCH 18 everything is sent to the said companies above, i get letter stating i was enrolled for Lantus, gotta re-enroll for Humalog in june.(my note)
TODAY IS APRIL 16, both LILLY CARES AND SAN.AVEN. told me the medicine arrived on MARCH 30th and March 20th
WHERE THE LKLQ@)#$RU$O$U$ IS MY MEDICINE THEN
OKay..... take break... breath... i just got a call back... from the "insert whatever horrible name." docs office
They said my name wasn't on the package... i can't believe that... and that they thought it was for them....................................................................................................................
They offered to give me some solar pens for the lantus, becasuse they gave most of the vials out 0.0! They have the humalog. They said i could use the pens with a syringe, just draw it up the same way (TRUE???)
reasons i hate doctors: billing offices, front desk offices, nurses, and yes i don't even like my doctor. She's to flighty or in a hurry with me. And i know i'm not helping by NOT having my sugars written down, but who's supposed to help me while i figure that out? These docs don't take house calls. I don't even like my doctor but i can't even get the simplest help, i mean i'm grateful for all the assistance i get, but for once i'd like them to respect the person who has the disease, especially when it comes to really important medicine.
I just love being diabetic, every day makes me want to be one even more *not sarcasm*
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