Saturday, April 25, 2009

Why

Why do you think diabetics decide to not take care of themselves or why do you think diabetics decide not to handle their blood sugar?

Being a diabetic is very hard, not acting like a diabetic is hard to, especially on your body

though a persons goal is to keep good control, a person also doesn't want to be tied down

It's really hard to be spontaneous when following a mundane schedule

When we have control of our blood sugar we have control of our diabetes, but we also have to deal with the confusing upkeep

when we choose not to take our medicine, count or carbs, or check our sugar we are trying to regain control of our life

(a life outside of the disease)

I find myself going back and forth from good control to bad control, because i want to have it all.

I want to be able to do whatever i want, and i don't want my sugar keeping me back

but if i don't do what i'm suppose to then i won't have the energy to accomplish what i need and dream to do

I want the great control, but i want the freedom to

by ignoring it, it doesn't exist

by acknowledging it we place boundaries and restrictions

but what about all the potential complications??

I believe diabetics yo yo so much because emotionally it's the only way we know to handle the disease, despite the end result

we know we're hurting ourselves, but if we can't handle it emotionally then we will never be able to handle the physical reality of it

it's the only way we don't go crazy

denail, anger, guilt, ashamed balanced with freedom, control, health, happiness

I think the answer to stop the yo yo effect is to find a balance between living your life and controlling your diabetes

Now that's the real challenge

keeping things fresh and living your life without limitations while not letting the diabetes get you down or control your life

but the enigma is

you have to remember that if you don't control you diabetes it will be hard to live that life without complications to your freedom

Friday, April 24, 2009

(Dia-game) Pack and Marlon

Released in 1995 on SNES, game cost 69.95

geared towards children with type 1, produced by the same people who did Cap. Novolin

Packy & Marlon is supported by Roche Diagnostics, makers of Accu-Chek(tm) products.

RODENTS have raided camp Camp Wakee, and these two cute elephants must gather all there scattered supplies and fend off the rats

fight gorillas, punching kangaroos, octopus, blowfish, a ghost and his little ghosts, and then beat the king rat (no idea how it ends, couldn't find much info)

logbooks,carb exchanges, multiple shots, and bgs carrying over each level! oh my

smash the rats, spit peanuts and water at them, collect food to keep sugar good, stay away from bad food, and for gods sake don't eat bad food because you'll pass out and die like cap novolin. {{game over}}

similar to Cap Novolin, you have to check your sugar, draw up your insulin, answer questions about diabetes from the owl and read facts

What I like.. This game saves lives because there was a 77 percent reduction in unscheduled urgent care visits for kids in a six month placebo controlled clinical trial AND 31 children played the game for 34 hours in the six month trial which was the same as the 28 patients who played the placebo video game. I didn't know placebos saved so many...question is which game was more fun the placebo or the real game.

Honestly the elephants are cute, they flap their ears like dumbo to fly, the controls are easier, the graphics are better

What i don't like the usual unfun educational gameplay. But this game was kinda cute, i dare say. Way better then Cap Novolin

articles and such:
alot of bad reviews on the game http://www.youtube.com/results?search_type=&search_query=Packy+and+Marlon&aq=f

http://en.wikipedia.org/wiki/Packy_and_Marlon\

18 grueling levels ugh http://www.somethingawful.com/d/rom-pit/packy-marlon.php

Clickhealth site doesn't work http://findarticles.com/p/articles/mi_m0EIN/is_1998_Oct_12/ai_53074401/

dying of lung cancer ? play SNES Rex Ronan http://en.wikipedia.org/wiki/Rex_Ronan

have asthma? play Bronkie the Bronchiasaurus only avaliable by prescription http://en.wikipedia.org/wiki/Bronkie_the_Bronchiasaurus

Thursday, April 23, 2009

(Dia-game) Capitan Novolin

This game is so weird i almost don't want to get in to it... This is what Magi and the sleeping star SHOULDN'T be.

This game was released in 1992 on SNES, retail 60 bucks

This game was sponsored by Novo Nordisk, makers of Novolin brand insulin.

Captain Novolin has to save the mayor who has been abducted by aliens. The mayor is slowing running out of supplies!

The aliens have turned into sugary foods like cookies and doughnuts, with predictable jumping patters.

Pregame you must listen to a "doctors" advice, match your sugar level to the colors, and use a very large needle to get your right dose. (holding down and pressing A fast will get to the game faster)

Captain Novolin must stomp, jump backwards, or duck his enemies, collect diabetic tips, answer some questions, and pick the right food that your doc recommended before the level.

The Mayor sugar is 30, do you give him cheese and crackers or a glucagon shot!! LOL

you have to input a 3 digit code in the beginning, i hope this doesn't mean the game will try to dosage your insulin

What I like... seriously i can't pick one, but i heard he makes some horrible noises when he falls and when he eats to much he falls down and dies or passes out. Also it was endorsed by Mary Taylor Moore, poor kids.

articles:
Will smith and Joan Rivers and I got killed by a cookie! http://www.youtube.com/watch?v=igAb2BXVIAw I

7 people made this game... watch this video for the rest of this sentence http://www.youtube.com/watch?v=flQu-MrcSE0

60 bucks!! http://www.diabeteshealth.com/read/1992/12/01/42/captain-novolin/
http://en.wikipedia.org/wiki/Captain_Novolin

that means that for every diabetic life it saved, it killed that many epileptics http://www.seanbaby.com/nes/egm04.htm

http://www.youtube.com/results?search_type=&search_query=speed+run+Captain+Novolin&aq=f

http://www.youtube.com/watch?v=H580n3fbk60


(Dia-game) Magi and the Sleeping Star

Here's a new game from Gamequalslife called The Magi and the Sleeping Star, it's about an 3rd person action adventure where a boy with magical ablities has to go save his family and beat the bad guys. BUT he has type 1 diabetes and his skills will be effected by his blood sugar, hey just like real life when i try to beat bad guys. In the game you must make sure your character eats the right amount of food, takes his medicine, and keeps his sugar in right place.

What i like about the game is that the hero has diabetes, which goes to show that having diabetes isn't everything and it cannot define you when evil is afoot! It will be nice to have a fantasy role model, but will it work? The music and game play look like it could be fun, just like a regular game.

What i don't like is that the game will try and give us advice about diabetes and will make you figure out all the annoying diabetes stuff just so you can go to the next step. How is a kid suppose to sit through figuring out somebody elses carbs, insulin intake, and then to top it off game producers medical mumbo jumbo; when all he wants to do is play the damn game. Also i have a problem basing one's life solely on blood sugar levels, yes there important but you don't want to teach kids to agonize over them to the point of hyperventilation. It's hard enough being diabetic, why do we have to make a fantasy game even harder? It's called a fantasy for a reason, because nobody would want to be a superhero with diabetes.

Despite my negativty i do welcome the challenge of a company to make a succesful game about diabetes or a diabetic hero. All superheros have some flaw, why not the hardship of rollar coaster bloodsugars, picking carbs, injecting insulin, and checking ones bloodsugar. He'll go ahead and start the merchandise, i'm sure a i wouldn't mind a Magi meter or bandaids.

(hopefully it's more successful then when they made a magic game based on the bible)

articles:
http://www.gamecareerguide.com/industry_news/23309/game_equals_life_announces_.php

http://www.developmag.com/press-releases/46573/Game-Equals-Life-Announces-The-Magi-and-the-Sleeping-Starndash-A-Breakthrough-Health-Game-for-Type-1-Diabetes

http://www.escapistmagazine.com/news/view/91142-Save-The-World-While-Saving-Your-Insulin

http://www.youtube.com/watch?v=SQOfo_RwHCc

Tuesday, April 14, 2009

i hate doctors

I hate doctors. Maybe i haven't found the right one but i think it's pretty expensive to go through doctors to just find the right one.

My medicine is free through LILLY CARES and SANOFI AVENTIS, (It's based on my income)

Insulin, you know the stuff that keeps me alive to begin with, kinda important

I went to the doctor to get her to help me enroll in the program and fax my prescription to them

I CALLED to remind them to do this, plus i had a A1C done and nobody called me on the results of that

I CALLED and left a message at the nurses station almost EVERYDAY, finally had to leave a message on whoever is in charge of their office

I was told to MAKE an appointment, and i did it because i was running low on medicine and wanted to do everything in my power to get them to FAX that prescription

I went to the appointment, was FINALLY told my a1c, and was told they were going to fax my stuff to L.C. and S.A t for me

THEY FINALLY DID IT, i even got some samples, because i told them once i run out of insulin i'm not taking anymore (just a threat, but seriously would have took me a while to afford it)

(special note: i have this weird phobia of not wanting to use or take medicine/diabetic supplies if i don't have money to get more, call me crazy, but i feel like i have some control of my supplies by not buying any)

MARCH 18 everything is sent to the said companies above, i get letter stating i was enrolled for Lantus, gotta re-enroll for Humalog in june.(my note)

TODAY IS APRIL 16, both LILLY CARES AND SAN.AVEN. told me the medicine arrived on MARCH 30th and March 20th

WHERE THE LKLQ@)#$RU$O$U$ IS MY MEDICINE THEN

OKay..... take break... breath... i just got a call back... from the "insert whatever horrible name." docs office

They said my name wasn't on the package... i can't believe that... and that they thought it was for them....................................................................................................................

They offered to give me some solar pens for the lantus, becasuse they gave most of the vials out 0.0! They have the humalog. They said i could use the pens with a syringe, just draw it up the same way (TRUE???)

reasons i hate doctors: billing offices, front desk offices, nurses, and yes i don't even like my doctor. She's to flighty or in a hurry with me. And i know i'm not helping by NOT having my sugars written down, but who's supposed to help me while i figure that out? These docs don't take house calls. I don't even like my doctor but i can't even get the simplest help, i mean i'm grateful for all the assistance i get, but for once i'd like them to respect the person who has the disease, especially when it comes to really important medicine.

I just love being diabetic, every day makes me want to be one even more *not sarcasm*

Saturday, April 11, 2009

my attempt at a diabetes poem

I'm feeling kinda weird, but part me believes this is normal
When you're on your feet all day working, your supposed to be tired
Tired when you wake up, tired in the afternoon, tired before you go to bed
Your supposed to be thirsty, drink water, and use the bathroom more
Even if it's every hour, and who cares if i drink soda to quench the thirst
I'm not feeling hungry, but i want to eat healthy, i'll eat some salad, or maybe nothing at all
I'm losing weight fast, but i don't really notice, must be all the water i'm downing
I go to the bar because i just turned 21, but after one drink i only crave one thing
water water water, add some mountain dew with grenadine, oh so yum
My friends want to stay out late, i just want to go to bed
My work wants me to come in, my energy is zapped even after a nap

My friend points out blankly that i might have diabetes, what's that??
I don't know what's wrong to me, i thought this was apart of growing up
Working hard, being tired, losing your self in the world around you
To the doc i went, she checked my sugar and said it was 500
The number meant nothing to me, must've been that moutain dew i darnk
she prescribed some pills, and shot me with some lantus
the prescription got tossed with the mail, i'll fill it when i have time

FINALLY A DAY OFF, i get to sleep in, horray! I deserve this day
Why is my mouth dry? When's the last time i ate? Why are my eyelids so heavy?
I can't breath, my chest feels heavy, i lay in bed just to fall back to sleep
My boyfriend freaks out and makes me hamburgers and salad
He read somewhere that carbs were bad, and so was sugar
The phone rings, but i'm in a another world, my frantic friend tells me to GO GO GO
To tired to fight, or worry about my lack of insurance, i go to the ER
Why do they call it a triage? There are no trees? My mouth is getting drier, it's actually peeling
The nurse asks me some questions, i honestly can't remember the rest,
I keep on falling asleep and waking back up, the nice nurse tells me to breath through my nose
It's to hard for me to do, can't i just go back to sleep, i cry?
They whisper around me, if she hadn't come sooner she would've died of DKA
I guess i have diabetes, whatever that is, but for right now i'm hooked up to this iv
When i finally do wake up, i feel safe in my hospital bed with the tv droning in the background
They said i can have as much jello as i want, but i gotta get my potassium up
The nurses laughter tinkles in the background, despite the painful pokes, i feel relaxed and safe.

I shoot an orange, i go to surgery for my MRSA, i drink grape flavored potassium, my friends visit, my work visits, diabetes educator comes, the billing department leaves me papers
The whole time i just kinda set in the background, innocent and naive to this whole diabetes thing. They leave me brochures for carb counting. I'm not really scared, maybe this is an early denial of some sorts but i actually think this is conquerable. Honestly i was glad to have answer to all the madness, it's time to live my life as a brand spanking new diabetic. If only i knew how hard it was really going to be. They kicked me out that hospital door, leaving me to feel even more alone then before.